Monday, July 13, 2009

My Grandson - Hayden




Just wanted to let everyone know: My grandson, Hayden, was taken to Children's Hospital in Washington DC last Thursday. They were hoping he would come home Sunday, but it may be today. Just waiting to hear. But they are taking it one day at a time.

Remember the Bubble Boy? Hayden is very close to being him, as his Dr told us Saturday. Hayden has been trying for the longest time to get over colds, ear infections, his poor injury on his finger. They finally got a Dr to question what the heck is going on and found out. He was rushed to DC.

Hayden has almost NO antibodies in his body. His appetite is poor. So what calories he does have, his body is using to fight off infections. Part of the reason he is not growing like he should! Saturday, he got his first IV dose of IGg (antibodies) with HOPES and PRAYERS his body can rebuild his own immune system. He will have to have this done every week. IF this doesn't work, then he will have to be put on the bone marrow list for a donor. His blood isn't clotting like it should either, so they kept him another day.

My son and Trish are devastated, along with the rest of the family. Hayden is only 2 years old. He is in good spirits and still ornery! As you can see what he did with his chocolate milk! Poured it out into his lap, chair! :) But gets tired easy now.

This is one time I hate being a nurse. You know too much. The look on my son's face just crushed my heart. We have to wear gloves, masks and gowns to see him.

Please keep Hayden and his parents in your prayers, please?

Thanks in advance for all the prayers. I don't know how much more I can carry on my back and shoulders.

7 comments:

Faith said...

Oh Beth....:(
how heartbraking....the cute little
guy and your family will be in my
prayers.....

He is precious....keep your chin up girl...hard oh yes.....but very
necessary...you have been through so much already....but you all have
each other....and God....

Sandie said...

So sorry to hear this. At least they have a diagnosis and can now work on helping him. I'll say a prayer for this sweet child.

Sandy said...

Oh.........so very sorry to read about this, and will keep you all in my thoughts and prayers. He's adorable even there in the hospital bed.

Take care of you
Sandy
Pop in, see some changes on the page,
check our goals, read about special summer needs, and it get's lonely when no one visits.

Sandy
bridge and beyond

Sandy said...

I'm blog walking this morning from Traveling Suitcase, thought I'd leave you an extra HUG and let you know you and yours are in my thoughts.

Please swing by when you can.
Sandy
traveling suitcase

Sandy said...

Not sure why but my link to the suitcase didn't work, sorry, will leave the url in a cut and paste for you.

Sandy
http://travelingsuitcase.blogspot.com/

Michell said...

I know that this is a few months late, but if you're still accepting gifts for your grandson, please email me. I'll be glad to work on something, although it may take some time, and it won't be crocheted. I'm learning, I promise! email me at j.t.laurie @ gmail . com

Michell said...

If you're still accepting gifts for your grandson, email me. I might be able to whip something up for him, although it will be knitted and it may take a bit longer than usual. Let me know, please!
my email is j.t.laurie @ gmail . com