9 hours ago
Monday, July 13, 2009
My Grandson - Hayden
Just wanted to let everyone know: My grandson, Hayden, was taken to Children's Hospital in Washington DC last Thursday. They were hoping he would come home Sunday, but it may be today. Just waiting to hear. But they are taking it one day at a time.
Remember the Bubble Boy? Hayden is very close to being him, as his Dr told us Saturday. Hayden has been trying for the longest time to get over colds, ear infections, his poor injury on his finger. They finally got a Dr to question what the heck is going on and found out. He was rushed to DC.
Hayden has almost NO antibodies in his body. His appetite is poor. So what calories he does have, his body is using to fight off infections. Part of the reason he is not growing like he should! Saturday, he got his first IV dose of IGg (antibodies) with HOPES and PRAYERS his body can rebuild his own immune system. He will have to have this done every week. IF this doesn't work, then he will have to be put on the bone marrow list for a donor. His blood isn't clotting like it should either, so they kept him another day.
My son and Trish are devastated, along with the rest of the family. Hayden is only 2 years old. He is in good spirits and still ornery! As you can see what he did with his chocolate milk! Poured it out into his lap, chair! :) But gets tired easy now.
This is one time I hate being a nurse. You know too much. The look on my son's face just crushed my heart. We have to wear gloves, masks and gowns to see him.
Please keep Hayden and his parents in your prayers, please?
Thanks in advance for all the prayers. I don't know how much more I can carry on my back and shoulders.