I'm Still Here!

I just wrote a big story and shared pics and the computer decided not to take it! So trying this again!

Colby and Clayton was born April 27th, 7 weeks early. Baby A Colby was 3 pounds 15 ounces and Baby B Clayton was 4 pounds 5 ounces. Trish had to have a c section and she is doing fantastic. Both boys are now over 4 pounds and last night they are in a crib - still in the NICU. But they are doing great! They will be taking a trip to DUKE in NC for further testing of SCID's. But this is a one happy Nana! They are so adorable! Just like their parents! I know Hayden would be so proud to have twin brothers! Mom couldn't wait till they were born too, and missed them. But they have 2 very special angels watching over them!

Will share more later when I can get to a computer. I miss all my blog friends so much - I missing out on alot! Everyone take care and hope to share more soon!!! Hugs to all!

Cook Out Fun with the Kids

My son, Chris, and his wife, Trish, invited us to their house for a cookout yesterday. They came to my house early that day and mowed my yard since my lawn mower decided to conk out! After that, Chris worked on my lawn mower, switched out some parts from another mower and waaa laaa...it works now! Yippee!!! So my Mom and I went to their house later for the cookout. On the drive there, it sprinkled. And the rain held out till after the cookout! We had a nice time there. Hayden's cousins were there and they are so cute. The youngest little girl brought over a handful of photograph albums of Hayden and we looked through them together. Eva was full of energy as always! She's getting attention from my Mom in the one picture. Hated to leave, as always. My Mom left her side of the car window down and my seat, floor board, dash and her purse were all soaked! So she had to ride home in the back seat. I felt like a chauffeur! hahaha

One week in hospital for Hayden...

....and he doesn't like it! When people visit, he wants to leave! Poor lil' guy. Before anyone can visit, you HAVE TO HAVE the H1N1 shot. So...I guess that means I need to go get my shot at the Health Department before I can visit. NOT looking forward to it! Chris and I had to wipe down ALL of his toys, books, etc. before Chris could take them to the hospital. He was so excited to have his toys in the room with him! Trish is decorating the room with all the cards he has received so far!

He was supposed to get his port put in today, but they are waiting for test results to come back. I'll share the final diagnosis when they get the results back. They re-tested all his blood work! And with what they told the kids last week - I'm glad they did!!!

The above picture was taken the last time Hayden was here visiting with me. We had fun on my laptop computer taking pictures of us!

My Precious Grandson

Just got word from my son. Hayden went to Children's in DC today for his IV dose of IGg. They did blood work and found that he is not making any red or white blood cells. They were told his body could shut down any time. He now has a respiratory disease (Small Airway disease) and calling in a lung specialist for him. Monday he has to go back to Children's Hospital for them to take a sample of bone marrow to test for possible infection in his bone marrow. Please keep Hayden Parsons, and his Mom and Dad (Chris and Trish) in your prayers.

These are recent pictures taken at Chris and Trish's home. The top picture is me with my oldest son, Chris. The other pictures are my youngest son, Matthew, and his girlfriend and myself playing in Hayden's room. I love getting on the floor and playing cars with him! Hayden was having fun pushing the vacuum around the kitchen and living room. He is so full of energy and smiles so much. So hard to look at him and see that he is so sick.

I'm looking for a miracle this Christmas - for Hayden to pull thru all of this so we can watch him grow up to become a fine young man!

Nana loves you so much Hayden!

It's snowing again!!!

My son, Chris, finally made it home from out West last week. It was great to have him home. He was supposed to go back out with a new trainer, but his trainer was sick. So Chris got to be home for the weekend and spend time with Hayden and the rest of us! Today, we drove to PA to the CRST facility to meet up with his trainer and hit the road again for his last 2 weeks of training. While waiting, it started misting but later turned into snowflakes. It snowed all the way home to VA. Just wet roads, but got home before it turned into something worse. Our front yard is white again! Here is a picture of Chris leaving in the CRST truck. He's in the passenger seat (you can't see him!) But I'll get a picture of him in the driver seat some day!

While he drove and we sat waiting, I made 2 and a half scarves for The Bridge Project. I deffinately had the mark of a crocheter! :)