Wednesday, August 5, 2009

Update on Hayden



I LOVE CHOCOLATE!!!!!



Just an update on my grandson, Hayden. Chris called to tell me that he went to see the Dr. at Children's Hospital in DC today.

One of his kidneys is smaller than the other. The Dr will begin blood testing family this weekend for the bone marrow match. If not, he will pull from the National List. The IV antibodies are not working. He wants Hayden to have chemotherapy with hopes it will help him when he receives the bone marrow transplant - with hopes it will stick! (Yes, he will lose all his hair.) He will have to stay at the Ronald McDonald House in DC for 3-4 months. He can't be no more than a half an hour from the hospital.

They are doing more testing today, and will be coming home tonight. So he will going back to Children's Hospital soon. I'll write more when I hear more.

PLEASE continue to pray for Hayden, please? Mom and Dad are having a really hard time accepting all this news. The rest of the family too. Hard to understand how a 2 year old can be so sick.

Thank you so much for all your prayers!!!

***I am having a card shower to fill Hayden's room when he is at the hospital. It will give him something to do and cheer up Mom and Dad. He loves Thomas the Train (his new bedroom is red and blue!)and Cars (Lightning McQueen!) He loves to color and write! He always gets GG's ink pens and writes for her! (I'm Nana and my Mom is GG for Great-Grandma!) He loves to blows kisses to everyone. If you would like to send Hayden a card, please email me for my address. Thanks again!!!

Saturday, July 25, 2009

Mr and Mrs. Hillyard - My Neighbors!!!






Today is the day - for the rest of your lives! Nate and Rhea got married today at 3:00 pm at Greenwood United Methodist Church in Winchester, VA. She has been thru so much and I am so happy for her! And Nate too - she got a good guy! The music was beautiful and her colors were peach and purple, with white. She was so beautiful! I got tears several times. My son, Matt, and his girlfriend, Holli, went also. It was a beautiful day for their wedding!

Thursday, July 23, 2009

Look at my Mom!


Yesterday was her last day at physical therapy. She had a Baker's cyst behind her right knee that was giving her problems. So the Dr gave her a cortisone shot and sent her to PT. I can't believe what she was able to do! She's 73! Puts me to shame! Her knee is much better. Thanks to Sandy! Mom and I both think she's the best therapist! (Sandy was my therapist when I injured my left shoulder) So now she is looking to join the Wellness Center to continue her therapy there and keep her busy! If I can just get her busy around the house! hahaha :)

Wednesday, July 22, 2009

Wordless Wednesday

Tuesday, July 21, 2009

My Charity in the Newspaper!

Winchester Star HeartFelt Angels article

We celebrated our 10 year celebration this past Saturday! We had alot of great food, great music, and fun! I can't believe the photographer put that silly hat picture in the paper! He said "Let's do something silly!" So I said ok! hahaha

Monday, July 13, 2009

My Grandson - Hayden




Just wanted to let everyone know: My grandson, Hayden, was taken to Children's Hospital in Washington DC last Thursday. They were hoping he would come home Sunday, but it may be today. Just waiting to hear. But they are taking it one day at a time.

Remember the Bubble Boy? Hayden is very close to being him, as his Dr told us Saturday. Hayden has been trying for the longest time to get over colds, ear infections, his poor injury on his finger. They finally got a Dr to question what the heck is going on and found out. He was rushed to DC.

Hayden has almost NO antibodies in his body. His appetite is poor. So what calories he does have, his body is using to fight off infections. Part of the reason he is not growing like he should! Saturday, he got his first IV dose of IGg (antibodies) with HOPES and PRAYERS his body can rebuild his own immune system. He will have to have this done every week. IF this doesn't work, then he will have to be put on the bone marrow list for a donor. His blood isn't clotting like it should either, so they kept him another day.

My son and Trish are devastated, along with the rest of the family. Hayden is only 2 years old. He is in good spirits and still ornery! As you can see what he did with his chocolate milk! Poured it out into his lap, chair! :) But gets tired easy now.

This is one time I hate being a nurse. You know too much. The look on my son's face just crushed my heart. We have to wear gloves, masks and gowns to see him.

Please keep Hayden and his parents in your prayers, please?

Thanks in advance for all the prayers. I don't know how much more I can carry on my back and shoulders.

Friday, July 10, 2009

Another House Fire


....right across the street from me again! In the newspaper it stated a TV was to blame for the fire. A lot of neighbors are a little uneasy right now. I had an interview at the hospital for my charity and couldn't go. I was blocked in my driveway, as you can see. So we will have the interview about my charity's 10 year anniversary on Tuesday! Everyone got out - no injuries.